This is a reader-submitted story.
1. My diagnosis is: Migraine, Migraine with Aura, Chronic Migraine
2. My migraine attack frequency is: Daily
3. I was diagnosed in: 2012
4. My comorbid conditions include: Depressive Disorder
5. I take _0_ medications/supplements each day for prevention and _3_medications/supplements to treat an acute attack
6. My first migraine attack was: about age 16/17
7. My most disabling migraine symptoms are: pain, allodynia, aura, fatigue
8. My strangest migraine symptoms are: numbness/tingling
9. My biggest migraine triggers are: weather changes, just living
10. I know a migraine attack is coming on when: They’re 24/7. I’m never without one.
11. The most frustrating part about having a migraine attack is: missing out on life.
12. During a migraine attack, I worry most about: the things I need to be doing.
13. When I think about migraine between attacks, I think: On low pain days, I’m constantly waiting for the other shoe to drop.
14. When I tell someone I have migraine, the response is usually: “Have you tried….?”
15. When someone tells me they have migraine, I think: I wouldn’t wish this on anyone.
16. When I see commercials about migraine treatments, I think: I wish that worked for me or that I could afford that.
17. My best coping tools are: Reading, writing poetry, and humor.
18. I find comfort in: My supportive family.
19. I get angry when people say: “It’s just a headache.”
20. I like it when people say: “How are you doing?”…and mean it.
21. Something kind someone can do for me during a migraine attack is: Not touch me! Allodynia hurts!
22. The best thing(s) a doctor has ever said to me about migraine is: “We’ll keep trying. Don’t give up.”
23. The hardest thing to accept about having migraine is: Missing out on time with family.
24. Migraine has taught me: To appreciate the things that really matter and to treasure the good moments.
25. The quotation, motto, mantra, or scripture that gets me through an attack is: “It’s okay to not be okay.” ~my sister.
26. If I could go back to the early days of my diagnosis, I would tell myself: “You don’t have to try to be so tough all the time.”
27. The people who support me most are: My sister and my son.
28. The thing I most wish people understood about migraine is: It varies so much from person to person; don’t judge a migraineur based on what yours are like.
29. Migraine and Headache Awareness Month is important to me because: It affects so many people, yet is among the most under researched disorder in the world.
30. One more thing I’d like to say about life with migraine is: It’s the hardest thing I’ve ever lived with/done in my life.
Reader-submitted stories solely represent the personal point of view, experience, and opinion of the author, not of The Daily Headache or Kerrie Smyres. Follow this link to learn how to share YOUR 30 Things about living with a headache disorder.