This is a reader-submitted post.
1. My diagnosis is: Hemiplegic migraine, Chronic migraine, Classic migraine with and without aura, Cluster headaches
2. My migraine attack frequency is: About 4 days a week
3. I was diagnosed in: 1990 (approximately)
4. My comorbid conditions include: Hypoglycemia, Allodynia
5. I take 5 medications/supplements each day for prevention and 4 medications/supplements to treat an acute attack
6. My first migraine attack was at about 12 years old.
7. My most disabling migraine symptoms are losing vision, vomiting, disabling pain.
8. My strangest migraine symptoms are losing the ability to speak clearly, foggy thinking, yawning non-stop, tunnel vision, seeing “sparkles”
9. My biggest migraine triggers are stress let-down, changes in sleep pattern, weather, hormones, not keeping a regular food schedule, traveling.
10. I know a migraine attack is coming on when my skin starts to get hot and my stomach starts to churn.
11. The most frustrating part about having a migraine attack is not being able to do anything about it, missing out on important life events, feeling like you are constantly letting people down.
12. During a migraine attack, I worry most about my husband having to pick up all of my slack.
13. When I think about migraine between attacks, I think “No migraine? There must be ABSOLUTELY NOTHING important going on today”
14. When I tell someone I have migraine, the response is usually some “magic” thing that they think will get rid of migraines… it won’t.
15. When someone tells me they have migraine, I think that if I talk to them for a minute or two I can figure out if they REALLY have migraines or if they get they occasional tension headache.
16. When I see commercials about migraine treatments, I think “Well here is another treatment that will be overpriced, highly metered by the insurance companies, and I won’t be able to take anyway because of the type of headaches that I have.”
17. My best coping tools are knowing that I have a primary care physician who will always be willing to break a headache if it won’t go away. I rarely have to go to the ER anymore.
18. I find comfort in knowing that my husband understands what I’m dealing with.
19. I get angry when people say “oh well if you would just do X (whatever supplement/juice/thing-they-say-on-TV) your migraines would go away
20. I like it when people say “I understand that you can’t be there. It’s ok.”
21. Something kind someone can do for me during a migraine attack is just leave me alone.
22. The best thing(s) a doctor has ever said to me about migraine is that they are willing to keep trying things until something works.
23. The hardest thing to accept about having migraine is that it doesn’t go away.
24. Migraine has taught me I can’t control everything.
25. The quotation, motto, mantra, or scripture that gets me through an attack is “nothing lasts forever”
26. If I could go back to the early days of my diagnosis, I would tell myself to prepare to deal with this for the rest of your life.
27. The people who support me most are my husband and my dogs (don’t tell me they aren’t people!)
28. The thing I most wish people understood about migraine is it can’t be fixed with a magic potion.
29. Migraine and Headache Awareness Month is important to me because it let’s people here real stories from real people
30. One more thing I’d like to say about life with migraine is although it’s difficult, it’s not beyond hope.
Reader-submitted stories solely represent the personal point of view, experience, and opinion of the author, not of The Daily Headache or Kerrie Smyres. Follow this link to learn how to share YOUR 30 Things about living with a headache disorder.