Coping, Favorites, Treatment

Don’t Give Up on Finding a Treatment

In the last week, four people have told me that while they are comforted to know that other people have similar experiences with headaches and migraines, they are saddened to learn that their headaches may never go away. This is distressing as one goal for this blog is to encourage people to keep seeking relief.

It’s not as impossible as it seems. While I haven’t found a magic bullet for myself, the vast majority do find a successful treatment. Even after you feel like you’ve tried every possible treatment, you have probably only scratched the surface. There are so many drugs and drug combinations that no one has tried them all (including Paula Kamen and me).

Most folks with headache define success as having their headaches disappear. Doctors have a different understanding. A treatment is successful if a person’s headaches are reduced in frequency and intensity by 50%.

Don’t get angry yet. Many people become headache-free, some don’t. No matter how much education and knowledge a health care provider has, they aren’t mechanics. Unlike a car, uniform results aren’t possible. The human brain and body are too complex to expect that.

But you can get relief. Be aggressive, but give new meds time to work — which may be as long as three months. See a headache specialist, not just a neurologist. If he or she is dismissive, tells you your headaches are all your fault, or that there’s nothing left to try, see a new headache specialist. Take supplements that have shown some success for headaches (under the supervision of a doctor).

Visit a sleep specialist, even if you feel like your sleep is fine (advice that I need to follow myself). Getting good sleep can go a long way toward easing headaches. Talk to a nutritionist. Not necessarily about an elimination diet, but about giving your body the fuel it needs. Try massage and essential
oils. Take yoga classes that don’t focus on sweating and breathing hard, but on taking care of your body and nurturing yourself.

You will get discouraged. You will be exhausted. You will be frustrated. Keep trying; wherever “there” is for you, you’ll make it.

Community, Doctors, Patient Education, Resources, Treatment, Triggers

Ask the Expert About Headaches & Migraines: National Headache Awareness Week

A daily Q&A with headache experts is being posted each day of National Headache Awareness Week. Submitted by patients, questions cover the gamut of headache topics. Some so far: sinus headaches, sudden onset headaches, new daily persistent headache, headaches triggered by sun or sex, and burning and tingling in the back of the head.

Q&As from Monday, Tuesday and Wednesday are available as Word (doc) files. Many more questions are covered in past issues of NHF Head Lines, the organization’s newsletter. Read archives of readers’ mail and Ask the Pharmacist.

I’m often asked for recommendations of headache clinics or specialists, but only have experience with a few. The experts participating in this week’s Q&A are listed below with links to their clinics.

Community, Patient Education, Resources

Expert Answers to Questions About Migraine & Headaches

Teri Robert and John Claude Krusz, a neurologist and headache expert, have been hard at work on answering patients’ questions about migraine and other headache disorders. You can learn a lot by poking around in the previous answers or ask your own questions.

Doctors, Favorites, Resources, Treatment

How to Find a Doctor Who Knows About Headache

Would you trust an editorial about foreign aid policy that was written by the author of bodice-ripper romance novels? How about trusting doctors who calls themselves headache specialists even though they are trained in totally different fields, aren’t certified in headache management, and/or don’t participate in either of the national headache societies?

Some people who appear to be unqualified for a job do have training or experience that you can’t see at first glance. Usually, though, your initial skepticism is proven to be well-founded. The only way to find out is to research the doctor beforehand and devote part of your first visit to interviewing your new doctor. The best credentials in the world mean nothing if the doctor isn’t a good match for you.

To find a headache specialist, start with the American Headache Society or National Headache Foundation. Both have comprehensive lists of specialists who are members of their organizations. Being a member doesn’t guarantee that the doctor is good, but I’d only see someone who was involved in a professional headache organization.

ACHE (part of AHS) has a physician finder on its website. You can call NHF for a list of members in your state (888-643-5552) or check the online database, which includes all headache management certified doctors, whether members or not.

Related posts:

Community, Doctors, Meds & Supplements, News & Research, Patient Education, Resources, Treatment

Headache NewsBlog By Headache Specialist Alexander Mauskop

Alexander Mauskop, director of the New York Headache Center, regularly posts his thoughts on current headache news on the aptly named Headache NewsBlog. He dispels myths and examines closely media coverage of headache news. Here’s a taste of Mauskop’s blog, but look over Headache NewsBlog to get the full flavor.

Current News

Medications

Botox