Vicki has tried numerous treatments with little success and is fighting the guilt feedback loop that so many chronics have. She’s considering having an occipital nerve block and would like to hear from others who have tried it — or other invasive procedures, like nerve stimulation.
This past couple of weeks have been really rough . . . kind of like a barroom brawl where, as soon as you stagger to your feet after getting knocked down, you get knocked down again!
I have been searching for answers for 17 years . . . the list of treatments and meds (both conventional and alternative) is huge. I continue to search for help; but when I can’t get much respite and spend the majority of my time in a dark room with ice packs and meditation, my spirits really sink. Right now I’m feeling pretty discouraged and can’t imagine how I can face a whole lifetime of this.
My doctor is now going to do an occipital nerve block in hopes that I will get some relief. I’ve tried to learn as much as possible about this, but haven’t had a lot of success. Does anyone know what the side affects are, and the risks/benefits of long-term, periodic treatment like this?
I try not to talk about the headaches; they bore me, so they must bore other people. The comments of others on this website are SO helpful. Another (minor) problem I have is a friend who I had to cancel a lunch date who is now irritated with me. I’ve thought several times about calling her, but realize I don’t have the energy to do it, and keep reminding myself that it’s HER issue, not really mine. I just can’t feel any more guilty. I have to fight it all the way.
Luckily, I have some very good, headache free days that reassure me that I’m
- not lazy
- not trying to be manipulative by being sick
- not trying to garner attention in a negative way
I’m also very fortunate to have a supportive family. While I wish I’d get a little more help with stuff around the house, I also have to realize that they have their own, very full lives with lots of demands and they don’t exist just to keep my propped up. Sometimes it’s hard not to get too self-centered.
I will continue to watch this post, and any advice about nerve blocks or any other of the more invasive procedures will be welcomed. As well as any information about long-term effects of using triptans. (I use about 12-20 per month.)
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If you’d like to share your story with readers (or just with me), please e-mail me. Sharing what you’re going through help lighten your load and helps others with their struggles.