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Hyperthyroidism. . . Or Not

The endocrinologist called with results for the thyroid and metabolic blood tests I had done. Everything looked great. I honestly can’t tell you how many different internists and specialists I’ve seen over the years. I do know that my tests always show that I’m on the good side of a normal range.

I made the first available appointment with an internist at my PCP’s office. Then I spent the weekend brainstorming all my syptoms. Even those that I’ve had so long they’ve become normal. Some conversational highlights:

  • You mean most people don’t feel lightheaded and woozy all the time?
  • Is it unusual that my arms and hands fall asleep multiple times each night?
  • Would you call my meltdowns panic attacks?

I discovered that the aggregate of doctors over the last 10 years have heard all the symptoms, but I’ve never given a single doctor the whole list.
Time to leave for my appointment. I’ll keep you updated.

7 Responses to Hyperthyroidism. . . Or Not

  1. Beth says:

    Do you have any other disorders in addition to migraine? I have undifferentiated connective tissue disease, chronic myofascial pain, fibromyalgia, migraine, Raynaud’s, dysautonomia, and an assortment of symptoms associated with them. The only abnormal blood tests have been elevated IgM and slightly low iron levels. My doctor tested some other things associated with the iron to figure out that I have anemia of chronic disease (mild at this time). The IgM level, which tipped the doctor off to my having connective tissue disease, is part of the cardiolipin antibodies panel. It’s not something that most doctors would test unless one had symptoms. All the rheumatological tests always come back negative. Most of my migraines are caused by extremely tight muscles in my neck and upper back, but I still have light, sound, odor sensitivity, and nausea with them. Dysautonomia affects different people differently. Last year I had unexplained weight loss, lightheadedness, dizziness, pins and needles in my hands and feet, waking up with numbness in one arm or the other, nausea for a couple hours every morning, frequent anxiety, violent shaking . . . I’ve had actual panic/anxiety attacks, but what I was having last year was different. Only my doctor and my best friend seemed to believe me. After many trips to the ER, even my husband began to believe that I was “just” having anxiety attacks. If I can help anyone avoid the awful experiences I had, I’ll gladly do it. I’m not sure what specialist would handle dysautonomia. My doctor is a family doctor who has a lot of patients with various connective tissue diseases, chronic pain, fibromyalgia, and CFS. Let me know if you want to compare symptoms by e-mail.

  2. Diana Lee says:

    I’ll be very interested to hear what your test results are.

    As you may already know if you’ve had a chance to follow my blog lately, I was diagnosed with diabetes earlier this year. I’m hopeful that getting it under control will help with my migraines and my overall quality of life. It’s been a big adjustment for me and hard to handle, but it has also been good to have some concrete explanations for some of my symptoms and generally just feeling so bad.

  3. Kelly McE says:

    Hi Kerrie,
    You might want to talk to the endocrinologist about (a) condition of your adrenal glands, and (b) your level of vitamin D. If your adrenal glands are exhausted, your thyroid won’t work properly even if the numbers are normal. As for Vitamin D, doctors have only scratched the surface of what it effects. Check out this website: http://thyroidbalance.com/ for some more info on thyroid issues.

    Hope your appointment went well.

    All the best,
    Kelly McE

  4. Paula says:

    Kerrie, I have been sick for ten years now. I sympathize with you. I hope you can get some answers. I enjoy reading your blog; so often no one, not even our closest friends, understands what it’s like to have chronic illness and pain (especially when you can’t put a name to the cause). Wish we could all meet in person, but it helps to meet you and all your readers here in the virtual world and know there are others going through the same things. Wishing you the best- Paula

  5. Donimo says:

    Hey, Kerrie. Sorry you’ve been feeling so rough lately. I’ve been reading now and again but have been dealing with major nausea and headache increases myself. I tend to get normal readings on all my blood tests, so I know where you’re at. I hope this doc can look at the aggregate of symptoms and get a handle of things. I messed around with taking T3 because I am so fatigued but then my heart started racing. My endocrinologist is so focused on my osteoporosis that she can’t seem to think about much else. She wonders if I am so nauseas because of high estrogen levels (her other thing is menopause and perimenopause), but I don’t think that’s the cause. I tell ya, I need to feel better in order to have the energy to manage my care!

  6. kell says:

    I just stumbled onto this while doing some research for my sister-in-law who has hyperthyroidism and is having multiple other problems. My sister has had multiple health issues for years including fatigue, nausea,vomiting, diarhea, frequent kidney stones and bladder infections, osteoporosis. Her calcium levels were often elevated on routine blood tests. Over the years she was told she had chronic fatigue, fibromialgia, mental problems, etc. I did some research for her and everything I found sounded like hyperparathyroidism. She finally found a doctor that confirmed the diagnosis and after having her parathyroid removed she is feeling and acting like a totally different person.

  7. Trisha says:

    Hi I was just dignosed with hyperthroydism and had
    many Migraines all my life. Now that I am older
    They went away, untill I was said to have hyperthyroids and I have a Migraine with extreme
    nausea and unbreable Migraines.I feel like someone
    is putting a hammer at my left side of my head
    near the temple. That is a chronic Migraine and it is going on 4 days and I can not take it anymore. I think it might be do to my latest diganosist. I hope not. Please help!
    Trisha
    In unbearable pain in Medford MA

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