Chronic Migraine, Community, Friends & Family

Participate in a Research Survey on Chronic Migraine & Couples

Everyone with chronic migraine knows it takes a massive toll on romantic relationships and families, but there’s little research on the topic. Here’s your chance to help remedy that. Karen Bacher, a migraineur and family studies PhD student at the University of New Mexico, is recruiting couples to complete an online survey to study the impact of migraine on the families of women with chronic migraine. By sharing her findings, she hopes to raise awareness among health care providers, counselors, and patients’ families.

Participants need to be married or cohabitating heterosexual couples between the ages of 21 and 55. The female must have chronic migraine, while their male partner must not have migraine. Partners will complete an online survey separately, which takes about 45 minutes per person. At the end of the survey, participants will have the option of entering a drawing for a $100 Visa gift card.

Couples interested in participating may contact Karen at for full eligibility criteria, benefits of participation, and the survey link.

Although I haven’t seen the survey, I’ve been emailing with Karen and am really excited about this research project, which is for her dissertation. I believe Karen “gets” the severity and impact of migraine and genuinely wants to do her part to improve the lives of chronic migraineurs. In case you’re not sure, it may help to know she’s had migraine for 29 years and gets no relief from medication, while her sister is disabled due to migraine.

I’m unable to participate because Hart has episodic migraine, but I urge you to do so if you fit the criteria. Understanding the weight of chronic migraine on families and romantic relationships is one crucial element in de-stigmatizing this illness. It could also improve our care from doctors and therapists. And, of course, anything that helps families better comprehend the plight of migraine is a boon to all migraineurs.

Friends & Family, News & Research, Society

Survey: What Do Others Think of Your Migraines?

From people thinking they’re playing hooky or trying to get attention to being told to get over their “headaches,” every migraineur has stories of appalling comments or behavior from friends, family, teachers, bosses, coworkers, and even strangers. Here’s your chance to tell your story. Complete this short, anonymous survey to help researchers better understand perceptions of migraine. The data gathered will be used to benefit other migraineurs and the health care professionals who work with us, as well as to educate the public at large.

Learn more about the survey in this writeup by Dawn Marcus, MD, headache specialist and lead researcher for this study: Research Opportunity: What do others think about your migraine?

The survey’s open through the end of April (which is tomorrow!), so submit your response now.

Chronic Migraine, Treatment

Last Chance to Complete TheraSpecs Survey & Enter to Win a Free Pair of Indoor TheraSpecs

Tomorrow, Wednesday, October 10, is the last day to complete the TheraSpecs survey about headaches, migraines and light sensitivity and enter to win your choice of a pair of indoor TheraSpecs migraine glasses or an iPod Shuffle. It only takes a few minutes to complete and will help me out enormously. Thanks!

Symptoms, Treatment

Please Help By Answering a Short Survey

Please help Hart and me refine the future of TheraSpecs by completing this short survey about headaches, migraines and light sensitivity. It less than 20 questions and takes about five minutes to complete. At the end, you can choose to enter your contact info for a chance to win your choice of a pair of Indoor TheraSpecs or an iPod Shuffle.