seeking joy in a life with chronic migraine, chronic daily headache and chronic illness
On Tuesday, I attended my first Headache on the Hill advocacy event in Washington, DC. It was an inspiring, educational experience where I learned a bit more about how our country works. I was one of 174 advocates who sought to get co-sponsors for a bill that would increase the number of residencies for people… Continue reading Headache on the Hill 2020
Pleasant emotions = good Painful emotions = bad These two equations summarize American society’s approach to emotions. We’re taught to strive for emotions that feel good as if seeking higher ground in a tsunami and to run like hell from ones that hurt. I wrote two weeks ago about slamming the door on my unwelcome houseguest… Continue reading If Only I Could Keep Running From Grief
Of all the new treatment roller coasters I’ve been on, the Spring TMS brought the most emotional ups and downs. I anticipated its release for 10 years, which means I’d stored up a decade of expectation. Nothing but a complete cessation of my migraine attacks could have lived up to that much hype. Here’s how the trial went for me:… Continue reading Spring TMS: A Patient’s Experience
Keeping up with the ketogenic diet and coordinating a new treatment (more on that soon) are taking all my energy right now. But I wanted to share my response to an email from someone who asked what my migraine attacks were like before I started DAO and what other migraine treatments I have tried. The list… Continue reading Effective Migraine Treatments for Me
Gastroenterologist & Headache Specialist I’m sorry to report that I didn’t learn much from the gastroenterologist (I know many of you were eager to hear something that might help you). He doesn’t think it’s a functional GI problem, but is a neurological problem. He said he’d be willing to do the tests if I wanted them.… Continue reading Gastroenterologist, Adderall, and Migraine Status