Meds & Supplements, Treatment

Balancing Compassion and Cynicism in the ER

Unless a migraine is intolerable, a migraineur won’t go to the loud, bright, frenzied ER. Who would willingly subject themselves to that without desperately needing pain relief? But for most migraineurs, the visit is a harrowing back-and-forth between patient and staff. They don’t get their pain treated adequately and they leave furious with doctors and nurses who question the legitimacy of their complaints.

While patients know what their own pain is like, ER staff don’t know the individual, but the patterns of many people. Some of these patients are truly in pain and others are looking for a fix. The patterns leave an imprint so that even the most compassionate doctors and nurses struggle to be caring, not naive, and cautious, not cynical.

Using migraine patients as an example, Kim from Emergiblog, who has been a nurse for 27 years, fights to balance this contradiction. Although she is sympathetic to chronic pain patients, she can’t forget the times that she’s been fooled. She illustrates the dilemma eloquently and has terrific tips for chronic pain patients to get better care in the ER.

[from Jessica via Migrainepage]

Meds & Supplements, News & Research, Treatment

An Opioid Without a “High”

Nubain, an injectable opioid, was effective for managing chronic pain in a recent study — without euphoria, sedation, tolerance or psychological side effects. Injecting Nubain daily, participants’ with previous level 8 to 10 pain had their pain reduced to a level 2 or 30. And the drug is already on the market.

It sounds too good to be true, but my heart still leapt when I read the Reuters article. I’ve got my fingers crossed.

Society

Assisted-Suicide Ruling Gives Hope for Treating Chronic Pain

Pain management docs and advocates for treating pain with narcotics when necessary see a glimmer of hope in last week’s Supreme Court decision to uphold Oregon’s assisted-suicide law. This ruling might help defend doctors, pharmacists and patients in jail or awaiting sentences for drug trafficking. An effective defense could advance society’s understanding of using narcotics for pain control.

Coping, Resources, Treatment

Web MD’s Pain Management & Migraine Relief Blog

Indie Cooper-Guzman, WebMD‘s pain management and migraine expert, has recently started a blog on exactly that. Using her knowledge gained as an RN and a chronic pain sufferer, Indie is devoted to educating health care providers about chronic pain and managing it successfully. Through her work with WebMD, she teaches patients a lot too. In addition to a blog, she also moderates the migraine/headache and pain management forums and the back pain support group.

Some of this week’s poignant posts include:

Grieving the Loss of a “Normal” Life is on a topic that many of you know intimately. It’s a comforting post in that it’s a reminder that we’re not alone, but far more comforting are the lessons learned that Indie shares. Yes, you grieve the loss of your life as you know or expect it to be, but you also learn how to live a better life.

“I remember what it was like when I realized my life would never be “normal” again…

“I went through a period where I didn’t want people I knew to see me like I was. I worked extremely hard to perfect my new walk and conceal the slight limp and the fact I would sometimes have to walk by swinging my leg from the hip when it failed to respond like it should. It is something I know I will have to deal with for the rest of my life but I am ok with it now.

“Being an independent female much of my life, I think the hardest thing I had to accept was the fact I would need to rely on others to help with certain things I had ordinarily done by and for myself. I still struggle with that one and probably always will.”

Mandatory Pain Management Education takes a constructive approach to fixing the problems associated with treating pain with opioids — in contrast to my recent preachy posts. She even links to some educational resources.

“Pain and pain syndromes are not going to go away. Mandatory education for all health care professionals, political and health care business/insurance workers, and anyone else who is involved with health care should be considered. It is necessary. Although we all have busy lives, it is time to demand some accountability for the standards of practice in pain management.”

Meds & Supplements, Society, Treatment

Chronic Pain is Real; Take Us Seriously!

An article in the current New England Journal of Medicine examines how the DEA‘s influence on medical practices for pain control ultimately harm patients. Although the article focuses on end-of-life pain control, the issues affect people with chronic pain as well. The authors assert,

“Uncontrolled pain and other distressing symptoms are the primary concerns and greatest fears of patients facing serious illness. More than 90 percent of the pain associated with severe illness can be relieved if physicians adhere to well-established guidelines and seek help, when necessary, from experts in pain management…. Despite the efficacy of opioids and a commitment by the medical profession to treat pain, abundant evidence suggests that patients’ fears of undertreatment of distressing symptoms are justified. Although a lack of proper training and overblown fears of addiction contribute to such undertreatment, physicians’ fears of regulatory oversight and disciplinary action remain a central stumbling block.”

Again, this is in the context of palliative care, so the practices are a different; the implications are much the same.

Using the NEJM article as a springboard, today’s New York Times addresses the core problem: Currently policy places fear of prescription drug addiction above the lives of people with pain. There’s little regard for those who wonder if a life with excruciating pain is better than no life at all.

The author describes how doctors’ hands are tied to some extent, and that how they work within these restrictions to treat patients or simply turn away from the dilemma all together.

“…[T]he D.E.A. has recently increased raids on doctors’ offices, confiscating files and arresting doctors on charges of overprescribing narcotics to patients who are addicts or drug dealers.

“Most of these physicians are compassionate people trying to help suffering patients but  are sometimes fooled by clever addicts, drug dealers or undercover agents who fake their pain.

“Yes, there are bad apples among members of the medical profession. There are some doctors who charge for medical exams that they never do and provide phony patients with prescriptions for narcotics to feed their habits or sell on the street.

“But should all physicians be subject to intense scrutiny by the D.E.A. and risk arrest and prosecution, leaving legitimate patients to suffer intensely or scramble to find other doctors willing to risk taking them on?

“The growing number of arrests of pain management specialists is exacting high costs for patients, physicians and medical insurers. Some doctors order costly but unnecessary diagnostic tests so they can show the D.E.A. a reason for prescribing strong pain medication.

“Many doctors are simply unwilling to prescribe narcotics, no matter how much a patient suffers. Ignorance, as well as a fear of the D.E.A., plays a role.”

Want to help get this mess sorted? Visit the American Pain Foundation‘s advocacy page for ways you can help. One quick way to contribute is to send a pre-written e-mail to your congressional representatives.

I can’t create a blog-safe link for the Times article. You’ll have to register with the newspaper to read it; even then, the link will expire in about a week.