Welcome to Kerrie Smyres' writings about chronic migraine, headache disorders, chronic illness & depression. Here you'll find coping strategies, resources, news & more to help you live a fabulous life with chronic illness.
What’s it like for you to live with cluster headache? The 30 Things About Your Life With Cluster Headache meme is a great way to share your experience. To share your answers on The Daily Headache, copy and paste the questions and your response into the submission form at the end of this post. Even if you don’t wish to share your answers publicly, I encourage you to think about the questions. Whether you share them with loved ones or just keep them for yourself, reflecting on your life with cluster headache can provide helpful insight.
1. I have been diagnosed with ___episodic ___ chronic cluster headache.
2. The longest break I’ve had between cycles is:
3. I experience ___ cluster cycles each year.
4. Without treatment, a typical cluster attack usually lasts:
5. During a cluster cycle, I have ___ attacks each day.
6. When I’m in a cluster cycle, I’m unable to:
7. To get through a cluster attack, I:
8. I take ____ medications/supplements each day for prevention and ____ medications/supplements to treat an acute attack.
9. My cluster cycles do/do not follow a predictable pattern.
10. It took _______ (weeks/months/years) to get an accurate diagnosis.
11. My first cluster attack happened at the age of:
12. During my first cluster attack, I thought:
13. I know a cluster cycle is coming when:
14. The most frustrating part about having cluster headache is:
15. During a cluster attack, I worry most about:
16. When I think about cluster headache between cluster cycles, I think:
17. When I tell someone I have cluster headache, the response is usually:
18. My best coping tools are:
19. I find comfort in:
20. I get angry when people say:
21. I like it when people say:
22. Something kind a person can do for me during a cluster cycle is:
23. The best thing a doctor has ever said to me about cluster headache is:
24. The hardest thing to accept about having cluster headache is:
25. Having cluster headache has taught me:
26. If I could go back to the early days of my diagnosis, I would tell myself:
27. The people who support me most are:
28. The thing I most wish people understood about cluster headache is:
29. Migraine and Headache Awareness Month is important to me because:
30. One more thing I’d like to say about cluster headache is:
To submit your post, complete the form below. You must fill in every field for your submission to go through (your name and email will not be published and I won’t send you spam). Within 24 hours, I will moderate it (to prove it’s not spam) and it will be published as an individual post with a URL you can share. Check the 30 Things Meme category for your post then click on your post title to get the URL.
If you have trouble with the submission form, please email me at kerrie[at]thedailyheadache[dot]com.
Special thanks to Tammy Rome from The Brain Storm blog for her feedback on these questions and to Invisible Illness Awareness Week for the idea for a 30 things meme. Readers were so receptive to the 30 Things About My Invisible Illness meme that I knew we needed something similar for Migraine and Headache Awareness Week.