Patient Stories
Chronic Migraine’s Isolation and Emotional Torment
Thursday, April 18th, 2013When the worst migraine I’ve had in months coincided with an overnight visit from a friend, I was overwhelmed by how incredibly alone I felt, even when surrounded by friends. In The Isolation of Chronic Migraine, a post I wrote about that night for Migraine.com, I said: The isolation gave me a sense of physical [...]
Read This Blog: Migraine Monologues
Thursday, September 27th, 2012Migraine Monologues is one of those blogs that’s too good to keep to myself. Written by Victoria Saxton, a 31-year-old migraineur who lives in London and is not a crazy cat lady, the blog is not only hilarious and thoughtful, but well-informed and well-researched. Some of my favorite posts: What Does Migraine Look Like? This [...]
Invisible Illness Awareness Week
Wednesday, September 12th, 2012For National Invisible Chronic Illness Awareness Week this week, its sponsors at Rest Ministries and volunteers have created and compiled a tremendous array of resources for those of us with invisible illnesses. Presentations from the virtual conference cover topics from relationships to work to identity. Several presentations remain this week, but all of them are [...]
Help Make Migraines Visible: National Migraine Awareness Month, June 1-30
Thursday, May 31st, 2012Help Make Migraines Visible, the theme of this year’s National Migraine Awareness Month, sponsored by the National Headache Foundation is full of opportunities for you to learn more about migraine* and a chance for you to help others understand what migraine is and what its like to live with this oft-dismissed disorder. This isn’t a [...]
Botox Post on Migraine.com & Appointment Discoveries
Wednesday, December 7th, 2011Botox and the Superstitions of Chronic Illness is my first post on Migraine.com, which I’ve joined as a patient advocate. In the post, I describe the pros and cons of Botox and my decision to get the injections today. I have just returned from the doctor’s office and do not have a horrendous migraine from [...]
Boston Red Sox Pitcher Jonathan Papelbon on Migraine
Thursday, October 2nd, 2008Revered Boston Red Sox pitcher Jonathan Papelbon is a rare athlete willing to admit how debilitating a migraine episode is. Most athletes say they push through it, fueling the public’s perception that a migraine is “just a headache” — and that migraineurs are whiners. Papelbon said: “They don’t go away,” he said. “You can usually [...]
Grace Beyond All Imagining
Monday, June 2nd, 2008Inner Dorothy‘s Sue explores her life with chronic daily headache in this guest post. A heartwarming, insightful writer, Sue’s compassion and zest for life is an example for us all. You can learn a lot about Sue in her self-described occupation: Preacher, Peddler of Hope, Frustrated Untangler of Theological Knots and Mysteries, Lady-in-Waiting for Two [...]
New York Times Migraine (and Chronic Daily Headache) Blog
Monday, February 11th, 2008Launched last week, the New York Times’ new migraine blog provides patient and expert perspectives on migraine and chronic daily headache. From the first two posts, it looks to be an excellent addition to the growing community of headache and migraine blogs. “Philosophical resignation” is how author and migraineur Siri Hustvedt describes her acceptance of [...]
A Reader’s Story: Living With New Daily Persistent Headache
Friday, February 8th, 2008Andy recently “celebrated” his third year anniversary of having a constant headache. He’s determined to keep it from defining who he is, which we all know is a constant struggle. I woke up with a headache on January 22, 2005 and it’s been there ever since. I also determined through my own research that it [...]
