Books & Products, Coping, Favorites, Mental Health, Resources, Treatment

Mindfulness & Meditation: An Introduction

Finally! Here’s an explanation of mindfulness meditation and the practice of mindfulness in general. The post is long but worth sticking with. (I think so at least!)

Mindfulness = Paying Attention
Mindfulness is captured by simple terms:

  • Paying attention
  • Being, not doing
  • Present moment awareness
  • Being “here”

Easy ideas, complicated concepts. The ubiquity of multitasking is an excellent example of the challenges. Home, work, play, school, friends, family… There’s so much to think about and it all fights for attention. With our minds everywhere at once, they are often far from our actual lives.

The UCSD Center for Mindfulness, part of the medical school’s psychiatry department, gives this definition:

[Mindfulness] is a quality, which human beings already have, but they have usually not been advised that they have it, that it is valuable, or that it can be cultivated. Mindfulness is the awareness that is not thinking (but that which is aware of thinking, as well as aware of each of the other ways we experience the sensory world, i.e., seeing, hearing, tasting, smelling, feeling through the body).

Mindfulness is non-judgmental and open-hearted (friendly and inviting of whatever arises in awareness). It is cultivated by paying attention on purpose, deeply, and without judgment to whatever arises in the present moment, either inside or outside of us. By intentionally practicing mindfulness, deliberately paying more careful moment-to-moment attention, individuals can live more fully and less on “automatic pilot,” thus, being more present for their own lives.

How is mindfulness part of meditation?
Meditation can be broken into two basic categories: Concentration and mindfulness. Until my recent introduction to mindfulness, I’d always thought of meditation as concentrating on clearing one’s mind or focusing on a narrow idea. To me, mindfulness seems the opposite.

What I love about Western medicine’s approach to mindfulness meditation is the focus on becoming aware of your body, to be rooted in what you are experiencing. Having felt that my body has “betrayed” by giving me migraine and chronic daily headache, I am amazed by all the good it does.

That said, mindfulness meditation also involves paying attention to negative sensations (i.e. pain). I’ve long been a fan of burying my nose in a book to distract myself. Paying attention to the pain, nausea and vertigo is indescribably difficult. I get frustrated nearly every time. Tears and yelling are not uncommon. But I keep practicing and, like with any knew skill, it becomes a little easier each time.

This approach fully acknowledges that the mind wanders. In fact, one of the CDs I use says that the nature of the mind is to wander. Thinking of it this way makes it easier to let the thoughts go and return to the practice. There’s a non-judgmental quality to it and one that I, with practice, am learning to accept.

Think it’s not for you? Think again.
If I can do it, anyone can. Seriously. I have only be involved with it for two months, but my health has already benefited. The definition I provide from the UCSD Center for Mindfulness is rather academic, but my experience hasn’t been. You’ve probably caught on by now that practice is key. I started with, and still use, a 20-minute CD segment. I feel my body relax as I progress and am always surprised when it ends.

The point of all this is not “enlightenment,” but better health. I now notice when I start to feel flushed, which is usually the beginning of a crash. Sometimes I push, but sometimes I stop. In the airport recently, the rigmarole, crowds and general feeling of being rushed got to me. All I did was sit down and breathe and felt better within 10 minutes. I also thought of a small step I could take to ensure I stayed calm: I could pre-board. Boy, did that help.

Want to join me?
I already know that mindfulness will become an integral part of my treatment. As such, it will likely become a main topic on The Daily Headache. You can follow along with my experience and may even want to join me. I’d love to get a dialog going where we can learn from each other.

Resources
I’ve found some websites with good introductions to mindfulness and mindfulness meditation. Some get kind of abstract and spiritual sounding, but try to think of how it can apply to your health and self-care. Following links about mindfulness-based stress reduction (MBSR) may be helpful.

For books, I recommend starting with Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress, Pain and Illness. Basically a book version of UMass’s Stress Reduction Clinic’s program, it takes a strong Western approach. It reads like the self-help book it is, yet has great information. You’ll help support The Daily Headache if you buy it through the link above or you can probably get it at your library.

Community, Coping, Resources, Treatment

April Headache Blog Carnival Posted

The April Headache & Migraine Blog Carnival is now up! This month’s carnival focuses on basic coping strategies for living with headache and migraine. I enjoyed reading the great posts and learning about some blogs I’d never heard of:

Many thanks to Diana from Somebody Heal Me for all her hard work on the carnival.

Patient Education, Resources

Online Tool to Assess What Kind of Headaches You Have

Migraine, tension-type, sinus, cluster. . . . You know what your headache feels like and the other symptoms you have. Seems like finding a diagnosis would be easy, but it can be quite complicated. Consider these factors:

Headache Central, an educational site sponsored by the Michigan Headache Treatment Network, has a tool to help classify your headaches in medical terms. The online program asks questions about your headaches, determining which questions to ask based on your previous responses. After you’ve answered all the questions, you’re given a page with your responses and possible diagnoses summarized in a doctor-friendly format to print and take to your next appointment.

The program is not intended for you to diagnose yourself but to provide your doctor with a more complete view of what you’re experiencing. Of course, many readers will use the information to guide further online research. Arriving at your doctor’s office well-informed is helpful; so is being open to what they have to say. Think of the headache classification tool a starting point from which your doc can ask you relevant questions (and vice versa) to flesh out your diagnosis and find the appropriate treatment for you.

FYI: The program doesn’t work in Firefox.

Community, Resources, Symptoms, Treatment, Triggers

Oliver Sacks Answers New York Times Migraine Blog Readers’ Questions

Renowned writer and neurologist Oliver Sacks describes non-visual auras, correlations between migraine and memory loss, migraine’s connection to strange dreams and more in Answers to Reader Questions on the New York Times migraine blog. Inquiries and responses aren’t about medical advice, but less frequently discussed components of migraine.

Topics covered:

  • Non-visual auras (like hallucinating or distorting sounds or smells, tingling in limbs, etc.)
  • Hormone levels
  • Genetics
  • Emotional changes
  • Creativity and intelligence
  • Bizarre dreams
  • Memory loss

As always, his post contains thoughtful answers and colorful stories.

Chronic Migraine, Coping, Friends & Family, Resources, Society

Helping Others Understand: A Letter to People Without Chronic Pain

Wish that your friends, family and coworkers had a better idea of what you’re going through? This anonymous letter has circulated on forums and by e-mail for a few years, but is always worth repeating.

Letter to people without chronic pain:

Having chronic pain means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about chronic pain and its affects, and of those that think they know, many are actually misinformed.

In the spirit of informing those who wish to understand:

These are the things that I would like you to understand about me before you judge me.

Please understand that being sick doesn’t mean I’m not still a human being. I have to spend most of my day in considerable pain and exhaustion, and if you visit, sometimes I’m not much fun to be with, but I’m still me– stuck inside this body. I still worry about school, my family, my friends, and most of the time, I’d like to hear you talk about yours too.

Please understand the difference between “happy” and “healthy.” When you’ve got the flu, you probably feel miserable with it, but, I’ve been sick for years. I can’t be miserable all the time. In fact, I work hard not being miserable. So, if your talking to me and I sound happy, it means I’m happy. That’s all. It doesn’t mean that I’m not in a lot of pain, or extremely tired, or that I’m getting better, or, any of those things. Please don’t say, “Oh, you’re sounding better!” or “But, you look so healthy!” I am merely coping. I am sounding happy and trying to look “normal.” If you want to comment on that, you’re welcome.

Please understand that being able to stand up for ten minutes doesn’t necessarily mean that I can stand up for twenty minutes or an hour. Just because I managed to stand up for thirty minutes yesterday doesn’t mean that I can do the same today. With a lot of diseases you’re paralyzed and can’t move. With this one, it gets more confusing everyday. It can be like a yo yo. I never know from day to day how I am going to feel when I wake up. In most cases, I never know from minute to minute. This is one of the hardest and most frustrating components of chronic pain.

That’s what chronic pain does to you.

Please understand that chronic pain is variable. It’s quite possible (for many, it’s common) that one day I am able to walk to the park and back, while the next day I’ll have trouble getting to the next room. Please don’t attack me when I’m ill by saying ” You did it before” or “oh I know you can do this!” If you want me to do something, ask if I can. In a similar vein, I may need to cancel a previous commitment at the last minute. If this happens, please do not take it personally. If you are able, please try to always remember how very lucky you are to be physically able to do all of the things that you can do.

Please understand that the “getting out and doing things” does not make me feel better, and can often make me seriously worse. You don’t know what I go through or how I suffer in my own private time. Telling me that I need exercise, or do some things to “get my mind off of it” may frustrate me to tears and is not correct. If I was capable of doing some things any or all of the time, don’t you think I would?

I am working with my doctor and I am doing what I am supposed to do.

Another statement that hurts is: “You just need to push yourself more, try harder.” Chronic pain can affect the whole body or be localized to specific areas. Sometimes participating in a single activity for a short or a long period of time can cause more damage and physical pain than you could ever imagine. Not to mention the recovery time, which can be intense. You can’t always read it on my face or in my body language. Also, chronic pain may cause secondary depression (wouldn’t you get depressed and down if you were hurting constantly for months or years?), but it is not created by depression.

Please understand that if I have to sit down, lie down, stay in bed, or take these pills now, that probably means that I do have to do it right now. It can’t be put off of forgotten just because I’m somewhere or I in the middle of doing something. Chronic pain does not forgive, nor does it wait for anyone.

If you want to suggest a cure to me, please don’t. It’s not because I don’t appreciate the thought, and it’s not because I don’t want to get well. Lord knows that isn’t true. In all likelihood if you’ve heard of it or tried it, so have I. In some cases, I have been made sicker, not better. This can involve side effects or allergic reactions. It also has includes failure, which in and of itself can make me feel even lower. If there was something that cured, or even helped people with my form of chronic pain, then we’d know about it. There is worldwide networking (both on and off the Internet) between people with chronic pain. If something worked, we would KNOW. Its definitely not for lack of trying. If, after reading this, you still feel the need to suggest a cure, then so be it. I may take what you said and discuss it with my doctor.

If I seem touchy, its probably because I am. It’s not how I try to be. As a matter of fact, I try very hard to be “normal.” I hope you will try to understand my situation unless you have been in my shoes, but as much as possible, I am asking you to try to be understanding in general.

In many ways I depend on you — people who are not sick. I need you to visit me when I am too sick to go out. Sometimes I need you to help me with the shopping, cooking or cleaning. I may need you to take me to the doctor or to the store. You are my link to normalcy. You can help me to keep in touch with the parts of my life that I miss and fully intend to undertake again, just as soon as I am able.

I know that I ask a lot from you, and I thank you for listening. It really does mean a lot.

Someone asked if I thought it was appropriate to share the letter with her family and boss. Will it backfire if the recipients haven’t shown an interest in understanding your pain?

photo credit: desi.italy