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What i Get

Share your story! 30 Things Migraine and Headache Awareness MemeThis is a reader-submitted story. Want to share your 30 Things? Here’s how: Migraine & Headache Disorders 30 Things Meme

My diagnosis is: chronic daily headache and chronic migraine
2. My migraine attack frequency is: headache at least one per day, leading to a migraine as few times per week
3. I was diagnosed in:2008, with just having migraines, but have since been diagnosed with chronic problems.
4. My comorbid conditions include: light, sounds, and smell sensitivity, nausea, atm and leg weakness, inability to concentrate/form thoughts, depression.
5. I take 5 medications/supplements each day for prevention and 2+ medications/supplements to treat an acute attack
6. My first migraine attack was: when I was eight years old
7. My most disabling migraine symptoms are: light sensitivity and nausea, and well duh: head pain
8. My strangest migraine symptoms are: having a stuffy feeling head right before an attack
9. My biggest migraine triggers are: prolonged loud sounds, laughing too hard, not eating, and hydration. Laying in bed too long after I wake up also is a trigger.
10. I know a migraine attack is coming on when: my Hess gets stuffy and my forehead and neck start to get stiff.
11. The most frustrating part about having a migraine attack is: people think I am both overrating my own pain level, and people expect me to continue with work and responsibilities.
12. During a migraine attack, I worry most about: making it work, so I can pay rent.
13. When I think about migraine between attacks, I think: how nice it is to be almost pain free. (I usually always have a headache, even if it’s not a migraine)
14. When I tell someone I have migraine, the response is usually: either A: they don’t understand what that really means, or B: they have another possible solution that I’ve already tried.
15. When someone tells me they have migraine, I think:I wonder how much better/worse they have it, because you never really know their pain level compared to yours.
16. When I see commercials about migraine treatments, I think: ha. Works in 30 minutes, right, and then I’m back to work or play? Sure. I wish
17. My best coping tools are:sites that share others’ experiences and ice packs. Both used at different times.
18. I find comfort in: the dark.
19. I get angry when people say: you’re fine. Do some work instead of just sortisitting there.
20. I like it when people say:Hey, it’s ok, I get it and I’m here to help.
21. Something kind someone can do for me during a migraine attack is: be with me and get me whatever I need..? Like my boyfriend? But others could pick up my shift at work with understanding.
22. The best thing(s) a doctor has ever said to me about migraine is: they haven’t said anything good to me. I’ve had nothing but doctors giving up on my case.
23. The hardest thing to accept about having migraine is: there is no cure. Your best chance is maybe to outgrow it or to have it be less later in life.
24. Migraine has taught me: empathy, and how to step out without being apologetic.
25. The quotation, motto, mantra, or scripture that gets me through an attack is: nothing..
26. If I could go back to the early days of my diagnosis, I would tell myself: enjoy your time when you’re pain free, and rest yourself when you’re in pain.
27. The people who support me most are: my parents, my boyfriend.
28. The thing I most wish people understood about migraine is: it’s not the victims fault.they don’t want to be in pain either.
29. Migraine and Headache Awareness Month is important to me because: people don’t understand
30. One more thing I’d like to say about life with migraine is:I wish it was gone.

Reader-submitted stories solely represent the personal point of view, experience, and opinion of the author, not of The Daily Headache or Kerrie Smyres.

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30 things on my migraines drop in buckey

Share your story! 30 Things Migraine and Headache Awareness MemeThis is a reader-submitted story. Want to share your 30 Things? Here’s how: Migraine & Headache Disorders 30 Things Meme

1. I have nonstop migraines for months at a time
2. 3 days plus nasty day after if not continual
3. Extreme vertigo one night watching tv but first ocular no headache caring for Mom with advanced Alzheimer’s
4.4-9’5
5. Last year finally
6. Honestly changes there’s herniated discs stomach oh all kinds of issues to the point what is migraine and what else is going on Fear
7. Between vitamins ect over 20 plus plus plus ice plus physical therapy plus trigger points plus dry needles moving on to acupuncture and piercing possible
8. Madness anxiety nausea vkmiting dizziness vertigo new stuff all the time
9. Triptans major anaphylaxis reaction Maybe sulfa based Migranal allergy to dextrose feverfew allergy to NSAIDs ALL Turmeric works but swelled up muscle relaxants cortisone taurine magnesium b vitamins Xanax Not done yet!!
10. Try to get out of bed stay out of bed till must rest
11. Weather fronts Florescent lights lots sugar Emotionsl dress ESP ex because emotionally abusive
12. I don’t feel like me anymore
13. Strokes losing my mind
14. Oh try this…
15. I wish I could take aspirin
16. Dark rooms quiet and ice and support from unexpected sources
17. My home
18. Why are you so upset
19. So how’s it doing today
20. Understand when I have to cancel
21. You have a right to feel upset with having a real disease
22. I had to quit work and can’t work if tgere are Florescent lights
/3. My life has bed. Brought to a daily struggle to just do the basics
24. To have patience and many people suffer from them
25. Emotions only last 90 seconds physical your fear or anxiety will pass It’s just the migraine talking
26. Learn every thing you can about this disease NOW
27. The ones who helped me most during my parents illnesses ESP my mothers
28. There’s very little you can do to control it just trying to deal every day is truly a struggle sometimes It controls my life not vice versa
29. It needs more publicity and we need to know we are not alone in this very alienating disease
30. There are so many destructive diseases out tgere Migraines are just one of a vast amount of suffering The key us we all suffer if not now at another point so let’s practice compassion for each other (hard to do when migraines make me angry. But it’s a daily struggle!)

Reader-submitted stories solely represent the personal point of view, experience, and opinion of the author, not of The Daily Headache or Kerrie Smyres.

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30 Things About Hannah’s Life With Migraine”

Share your story! 30 Things Migraine and Headache Awareness MemeThis is a reader-submitted story. Want to share your 30 Things? Here’s how: Migraine & Headache Disorders 30 Things Meme

1. My diagnosis is: Episodic Migraine
2. My migraine attack or headache frequency is: 3-5 a month
3. The first migraine attack or headache I remember was: 14?
4. My pain levels range from: 1-9, average of 5
5. I was diagnosed in: 1997ish
6. My comorbid conditions include: Depression, Asthma, Allergies
7. I take 4 pills each day for prevention and 1 pill, and sometimes 1 injection, to treat an acute attack
8. In addition to pain, other symptoms I experience include: Visual changes, photophobia, phonophobia, nausea, extreme fatigue, brain fog
9. Treatments I have tried include: Tons of meds, supplements, chiropractor, craniosacral massage
10. During a migraine attack or headache, I: Sleep, a lot
11. My migraine attacks or headaches are triggered or get worse when: I’m stressed, sleep too little or too much, skip meals, monthly hormonal changes, drink caffeine or red wine, change my routine
12. The most frustrating part about having migraine or a headache disorder is: Missing out on life
13. Having migraine or a headache disorder causes me to worry about: Losing my job and friends
14. When I tell someone I have migraine or a headache disorder, they usually assume or say: They feel sorry for me
15. When I see ads or articles about migraine or headache disorders, I think: Nothing new (mostly)
16. My best coping tools are: Meditation, yoga, having gratitude
17. I find comfort in: My pets
18. I get angry when people say: “Again??”
19. I like it when people say: “How can I help you?”
20. Something kind a person can do for me during a migraine attack or headache is: Give me a place to sleep it off or offer to drive me home
21. The best thing a doctor has ever said to me about having migraine or a headache disorder is: “I need to know everything about your medical history so I know how to best help you.”
22. Having migraine or a headache disorder has affected my work/school life by: Having to miss so much work, fearing that my employers won’t understand or be accommodating
23. The hardest thing to accept about having migraine or a headache disorder is: Never knowing when the next attach will happen
24. Having migraine or a headache disorder has taught me: Never take your health for granted
25. The quotation, motto, mantra, or scripture that gets me through hard days is: “Be grateful because some people have it worse”
26. If I could go back to the early days of my diagnosis, I would tell myself: Stop drinking so much caffeine!
27. The people who support me most are: Dave, Mom, Dad
28. The thing I most wish people understood about migraine or headache disorders is: Even when I take meds, I can’t function normally
29. Migraine and Headache Awareness Month is important to me because: It’s bringing awareness to a highly stigmatized illness
30. One more thing I’d like to say about migraine or my headache disorder is: It’s not just a headache!

Reader-submitted stories solely represent the personal point of view, experience, and opinion of the author, not of The Daily Headache or Kerrie Smyres.

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My Chronic Migraine

Share your story! 30 Things Migraine and Headache Awareness MemeThis is a reader-submitted story. Want to share your 30 Things? Here’s how: Migraine & Headache Disorders 30 Things Meme

1. My diagnosis is: Chronic Complex Migraine.
2. My migraine attack frequency is: daily headache, migraine 3-6 days weekly with current treatment.
3. I was diagnosed in: Initial migraine dx in 1997, Chronic Complex dx in 2014.
4. My comorbid conditions include: Fibromyalgia, gluten and lactose sensitivity, TMJ
5. I take 12 medications/supplements each day for prevention and 3+ medications/supplements to treat an acute attack in addition to self-administered IM shots. Also, I receive 30+ injections in my face, head, neck and shoulders every three months.
6. My first migraine attack was: when I was ten years old.
7. My most disabling migraine symptoms are: Intense pain, unrelenting nausea.
8. My strangest migraine symptoms are: Inability to find words or speak clearly, numb lips.
9. My biggest migraine triggers are: Sleep, Heat, Weather Changes, Stress, Menstrual Cycle
10. I know a migraine attack is coming on when: I begin stuttering and using incorrect wording, I begin seeing sparkles and rainbows, and my ears feel full.
11. The most frustrating part about having a migraine attack is: Missing out on so much life and letting loved ones down repeatedly.
12. During a migraine attack, I worry most about: Making sure my children are cared for.
13. When I think about migraine between attacks, I think: Better not travel too far from home, bring medications just in case, WHEN will the next one hit, please, God, let it be a good day.
14. When I tell someone I have migraine, the response is usually: Random people, “Oh, I get headaches, too.” Loved ones, “I’m so sorry, can I help?”
15. When someone tells me they have migraine, I think: “God, please remove their pain and symptoms and enable them to live a normal life.”
16. When I see commercials about migraine treatments, I think: “Yup, tried that.” And, “Yeah, if it were that easy!”
17. My best coping tools are: the support of my family and friends and prayer.
18. I find comfort in: Cool, dark, quiet rooms and praying.
19. I get angry when people say: “So, you’ll be better when?”
20. I like it when people say: “Can I help?”
21. Something kind someone can do for me during a migraine attack is: Pray for relief and Keep my area quiet and undisturbed.
22. The best thing(s) a doctor has ever said to me about migraine is: “You are my partner.”
23. The hardest thing to accept about having migraine is: Continuously letting people down and knowing it’s not going to cease.
24. Migraine has taught me: Live in the moment and Slow down. Also, I’ve met many others with varying illnesses and I feel like I have a more compassionate spirit with them due to living with migraine.
25. The quotation, motto, mantra, or scripture that gets me through an attack is: “This too shall pass.” “Be still and know that I am God.”
26. If I could go back to the early days of my diagnosis, I would tell myself: Make memories now.
27. The people who support me most are: my husband, children, parents, in-laws, friends. I’m very blessed with a large, understanding group of loved ones.
28. The thing I most wish people understood about migraine is: I’m not doing it to you. It’s happening to me. Also, it’s not just a “headache.”
29. Migraine and Headache Awareness Month is important to me because: I can outwardly share my experiences in hopes of helping another.
30. One more thing I’d like to say about life with migraine is: It’s challenging in ways you’d never think. The giggles of my children are my favorite sounds, except during an attack. You hold back tears no matter how bad it hurts because you know that it will only increase the pain. Cancelling my daughter’s fifth birthday party, missing our anniversary trip, not being able to attend family holidays and functions weigh heavily on my heart. The guilt stabs at inopportune times.
I’m trying very hard to not let migraine own me, but it is exhausting to keep fighting every.single.day.

Reader-submitted stories solely represent the personal point of view, experience, and opinion of the author, not of The Daily Headache or Kerrie Smyres.

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30 things about my migraine experience

Share your story! 30 Things Migraine and Headache Awareness MemeThis is a reader-submitted story. Want to share your 30 Things? Here’s how: Migraine & Headache Disorders 30 Things Meme

1.My diagnosis is: hormonal migraine
2.My migraine frequency is: 2 migraines in 48 hours immediately prior to or at the start of my period each month.
3. The first migraine I remember is: at age 21 when I was prescribed the oral contraceptive pill. I had aura and pain so bad, I banged my head against the wall to try and make it go away. Didn’t work.
4.My pain levels range from 5-8
5. I was diagnosed in 1991
6. My co morbid conditions include IBS, depression, anxiety and PMDD.
7.I take NO pills for prevention.
8.In addition to pain, other symptoms I experience are nausea, vomiting, diarrhea,loss of appetite,irritability, photosensitivity and brain fog.
9. Treatments I have tried: paracetamol, antinausea, naproxen, ibuprofen and codeine.
10.During a migraine attack I: take pain pills and go to bed in a dark room with a cold compress. And a bucket by the bed.
11. My migraine is triggered or gets worse with: PMS, stress, bright lights, rotating ceiling fans.
12.The most frustrating thing about having migraine is: the lack of understanding/empathy.
13.Having migraine causes me to worry about: vomiting in public and not being able to get home quickly. Embarrassing myself.
14.When I tell someone I have migraine, they usually say: (or tell me about their friend/relation who has it, and isn’t that bad). Feels like it minimizes my experience.
15.when I see ads about migraine: I don’t usually believe them, especially if they seem like a miracle cure.
16.my best coping tools are: bed rest and a cold compress. Codeine works sometimes.
17.I find comfort in: silence
18.I get angry when people say: its not that bad or try to convince mevof a miracle cure or supplement.
19. I like it when people say: I hope you feel better soon.
20.Something kind someone can do for me during a migraine is: change my cold compress regularly.
21.The vest thing a doctor has said to me about having migraine is: there are lots of treatments we can try, I’m not giving up.
22.Having migraine has affected my work by impairing my concentration and sometimes having to call in sick.
23.the hardest thing to accept about having migraine is I might have it my whole life and that is depressing.
24.Having migraine has taught me how sensitive my body is and that I must pay more attention to my stress levels.
25. I don’t really have a quotation or mantra.
26.if I could go back to the early days of my diagnosis, I would tell myself ” this is only 2 days a month, not my whole life”.
27.The people who support me most are my doctor and my friend Tracy.
28.The thing I wish people understood about migraine is there is no single cause or cure.
29.Migraine and Headache Awareness Month is important to me because: its a reminder that millions of other people lice with

Reader-submitted stories solely represent the personal point of view, experience, and opinion of the author, not of The Daily Headache or Kerrie Smyres.