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My Chronic Migraine

Share your story! 30 Things Migraine and Headache Awareness MemeThis is a reader-submitted story. Want to share your 30 Things? Here’s how: Migraine & Headache Disorders 30 Things Meme

1. My diagnosis is: Chronic Complex Migraine.
2. My migraine attack frequency is: daily headache, migraine 3-6 days weekly with current treatment.
3. I was diagnosed in: Initial migraine dx in 1997, Chronic Complex dx in 2014.
4. My comorbid conditions include: Fibromyalgia, gluten and lactose sensitivity, TMJ
5. I take 12 medications/supplements each day for prevention and 3+ medications/supplements to treat an acute attack in addition to self-administered IM shots. Also, I receive 30+ injections in my face, head, neck and shoulders every three months.
6. My first migraine attack was: when I was ten years old.
7. My most disabling migraine symptoms are: Intense pain, unrelenting nausea.
8. My strangest migraine symptoms are: Inability to find words or speak clearly, numb lips.
9. My biggest migraine triggers are: Sleep, Heat, Weather Changes, Stress, Menstrual Cycle
10. I know a migraine attack is coming on when: I begin stuttering and using incorrect wording, I begin seeing sparkles and rainbows, and my ears feel full.
11. The most frustrating part about having a migraine attack is: Missing out on so much life and letting loved ones down repeatedly.
12. During a migraine attack, I worry most about: Making sure my children are cared for.
13. When I think about migraine between attacks, I think: Better not travel too far from home, bring medications just in case, WHEN will the next one hit, please, God, let it be a good day.
14. When I tell someone I have migraine, the response is usually: Random people, “Oh, I get headaches, too.” Loved ones, “I’m so sorry, can I help?”
15. When someone tells me they have migraine, I think: “God, please remove their pain and symptoms and enable them to live a normal life.”
16. When I see commercials about migraine treatments, I think: “Yup, tried that.” And, “Yeah, if it were that easy!”
17. My best coping tools are: the support of my family and friends and prayer.
18. I find comfort in: Cool, dark, quiet rooms and praying.
19. I get angry when people say: “So, you’ll be better when?”
20. I like it when people say: “Can I help?”
21. Something kind someone can do for me during a migraine attack is: Pray for relief and Keep my area quiet and undisturbed.
22. The best thing(s) a doctor has ever said to me about migraine is: “You are my partner.”
23. The hardest thing to accept about having migraine is: Continuously letting people down and knowing it’s not going to cease.
24. Migraine has taught me: Live in the moment and Slow down. Also, I’ve met many others with varying illnesses and I feel like I have a more compassionate spirit with them due to living with migraine.
25. The quotation, motto, mantra, or scripture that gets me through an attack is: “This too shall pass.” “Be still and know that I am God.”
26. If I could go back to the early days of my diagnosis, I would tell myself: Make memories now.
27. The people who support me most are: my husband, children, parents, in-laws, friends. I’m very blessed with a large, understanding group of loved ones.
28. The thing I most wish people understood about migraine is: I’m not doing it to you. It’s happening to me. Also, it’s not just a “headache.”
29. Migraine and Headache Awareness Month is important to me because: I can outwardly share my experiences in hopes of helping another.
30. One more thing I’d like to say about life with migraine is: It’s challenging in ways you’d never think. The giggles of my children are my favorite sounds, except during an attack. You hold back tears no matter how bad it hurts because you know that it will only increase the pain. Cancelling my daughter’s fifth birthday party, missing our anniversary trip, not being able to attend family holidays and functions weigh heavily on my heart. The guilt stabs at inopportune times.
I’m trying very hard to not let migraine own me, but it is exhausting to keep fighting every.single.day.

Reader-submitted stories solely represent the personal point of view, experience, and opinion of the author, not of The Daily Headache or Kerrie Smyres.

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