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30 things about my migraine experience

Share your story! 30 Things Migraine and Headache Awareness MemeThis is a reader-submitted story. Want to share your 30 Things? Here’s how: Migraine & Headache Disorders 30 Things Meme

1.My diagnosis is: hormonal migraine
2.My migraine frequency is: 2 migraines in 48 hours immediately prior to or at the start of my period each month. They are getting worse closer to menopause ( I am 46).
3. The first migraine I remember is: at age 21 when I was prescribed the oral contraceptive pill. I had aura and pain so bad, I banged my head against the wall to try and make it go away. Didn’t work.
4.My pain levels range from 5-8
5. I was diagnosed in 1991
6. My co morbid conditions include IBS, depression, anxiety and PMDD.
7.I take NO pills for prevention.
8.In addition to pain, other symptoms I experience are nausea, vomiting, diarrhea,loss of appetite,irritability, photosensitivity and brain fog.
9. Treatments I have tried: paracetamol, antinausea, naproxen, ibuprofen and codeine. Codeine is best.
10.During a migraine attack I: take pain pills and go to bed in a dark room with a cold compress. And a bucket by the bed. I hate vomiting and often get very panicky like an anxiety attack.
11. My migraine is triggered or gets worse with: PMS, stress, bright lights, rotating ceiling fans.
12.The most frustrating thing about having migraine is: the lack of understanding/empathy.
13.Having migraine causes me to worry about: vomiting in public and not being able to get home quickly. Embarrassing myself.
14.When I tell someone I have migraine, they usually say: (or tell me about their friend/relation who has it, and isn’t that bad). Feels like it minimizes my experience.
15.when I see ads about migraine: I don’t usually believe them, especially if they seem like a miracle cure. Because I know there isn’t a cure.
16.my best coping tools are: bed rest and a cold compress. Codeine works sometimes.
17.I find comfort in: silence
18.I get angry when people say: its not that bad or try to convince me of a miracle cure or supplement.
19. I like it when people say: I hope you feel better soon.
20.Something kind someone can do for me during a migraine is: change my cold compress regularly.
21.The best thing a doctor has said to me about having migraine is: there are lots of treatments we can try, I’m not giving up.
22.Having migraine has affected my work by impairing my concentration and sometimes having to call in sick. Not being able to work in brightly lit areas.
23.the hardest thing to accept about having migraine is I might have it my whole life and that is depressing.
24.Having migraine has taught me how sensitive my body is and that I must pay more attention to my stress levels.
25. I don’t really have a quotation or mantra.
26.if I could go back to the early days of my diagnosis, I would tell myself ” this is only 2 days a month, not my whole life”.
27.The people who support me most are my doctor and my friend Tracy.
28.The thing I wish people understood about migraine is there is no single cause or cure.
29.Migraine and Headache Awareness Month is important to me because: its a reminder that millions of other people live with migraine and there is a great support network out there.
30.One more thing I’d like to say about migraine is: never underestimate the pain, suffering and angst we go through when we are labelled as hypochondriacs. We aren’t making the pain up and we aren’t pretending to be in pain up to get attention. We need your empathy and understanding.

Reader-submitted stories solely represent the personal point of view, experience, and opinion of the author, not of The Daily Headache or Kerrie Smyres.

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