Daisy Griffin, a 14-year-old who has chronic migraine, raised $12,110 for migraine research by sailing alone across the Long Island Sound. She will donate 100% of the money raised to the Migraine Research Foundation.
Daisy’s Migraine Story
Daisy has had severe
migraine attacks since she was four, which have progressed to chronic. Like so many of us, she has tried a slew of treatments, from medications to supplements to yoga to biofeedback. She’s had two in-patient hospital stays to treat migraine. Thanks to a couple preventive medications, she’s feeling better now, but still has a headache every day and migraine attacks at least a few days a week.
When I asked what she wished people understood about migraine, she said, “I really wish that people would get that I’m not just having a headache. I have a headache all the time and a few times a week it becomes a severe migraine. A lot of times people tell me how lucky I am that I miss school all the time. I actually feel lucky when I can make it to school, or even when I can get out of bed.”
Sailing for Migraine Research
Daisy has been sailing avidly since she was eight years old. It’s one of her great passions and she fears chronic migraine could force her to give up. Since she’s been feeling better, she sees this sailing trip across the sound as “sort of like me saying: Take that migraines! I can still do what I love!”
Daisy sailed an 18-foot spinnaker, the largest boat she’s ever sailed by herself. The sailing itself was much easier than she expected because the wind wasn’t very strong. But little wind also made for, in Daisy’s words, a “loooong” trip.
Having chronic migraine meant that Daisy’s trip could have be derailed by the ever-present threat of another attack. She was hopeful that even if she had a migraine attack, sailing would distract and relax her, as it usually does. To prepare, she made sure she got enough sleep and drank a lot of water before the trip. It worked! Daisy’s head hurt a bit, but she didn’t have a migraine attack. (Her father trailed at in a motorboat, so she could radio him for help if she had an attack. But she didn’t need to.)
Fundraising
In addition to the sailing trip, Daisy has raised awareness and donations through a booth at local fair (where she hosted a migraine trivia game) and a lemonade stand with her siblings and cousins. She wrote to groups and individuals to solicit donations and publicize her trip. A generous donor agreed to double the amount that she raised, which brought the total to $12,110.
You can still donate to Daisy’s campaign and the Migraine Research Foundation through CrowdRise.
Way to Go, Daisy!
I’ve never met Daisy, but I’m tearing up as I write about her accomplishments. Much of her young life has been dominated by migraine. Instead of trying to forget about migraine as soon as she felt better (as most of us would have done whether 14 or 57), she threw her newfound energy into raising awareness and funding for research. Her efforts took remarkable dedication and resourcefulness. It’s an impressive feat at any age.
Learn more about Daisy and her trip on her website, Sail for Migraine Research.
Your story has really helped me. My daughter suffers from migraines and auras for 6 years now. I plan on sharing this with her because she still struggles with acceptance. She realizes her condition but doesn’t accept it. (If u know what I mean) you are incredible…keep going and thank you
So proud of you.I have the same case as you do.Chronic migraines since I was 5. I didn’t know how i survived high school and College with migraine headaches everyday. Hope we can find more research on this:)
Wow!! This girl is unbelievable… What a true inspiration. So many of us want to bring the sheets over our heads with chronic pain. So impressive!!
What a wonderful girl, and what an inspiration at such a young age. I’m amazed that she has already been able to tap into the one gift that chronic migraines can create, and that is that that it unleashes the strength that we all have inside us. I have no doubt that this girl will accomplish great things in her lifetime…she’s off to a great start.
MZ, what a lovely comment! I agree with you.
Take care,
Kerrie