30 Things Meme

My migraine rant?

This is a reader-submitted story.

1. My diagnosis is: Chronic migraine
2. My migraine attack frequency is: more than 15 days a month
3. I was diagnosed in: 2009, I think
4. My comorbid conditions include: not sure, maybe depression and anger (crankiness)
5. I take __0__ medications/supplements each day for prevention and _2___ medications/supplements to treat an acute attack
6. My first migraine attack was: as a child
7. My most disabling migraine symptoms are: pain and fatigue
8. My strangest migraine symptoms are: sore scalp (or I say sore hair)
9. My biggest migraine triggers are: lowering barometric pressure, stress, bright lights doing strange things
10. I know a migraine attack is coming on when: my head starts to hurt or my neck gets stiff, or my eyes don’t like all the stuff the lights are doing
11. The most frustrating part about having a migraine attack is: the aphasia, dizzyness, fatigue, sadness, frustration
12. During a migraine attack, I worry most about: the drugs not working or I’m taking too much
13. When I think about migraine between attacks, I think: I don’t have them and all is good
14. When I tell someone I have migraine, the response is usually: Oh I get those too.
15. When someone tells me they have migraine, I think: What drugs do you take that help you? Or how do you work having migraines
16. When I see commercials about migraine treatments, I think: What are the side effects?
17. My best coping tools are: taking the drugs at the right point
18. I find comfort in: Everybody has troubles, so do I. Maybe I can help them at some point.
19. I get angry when people say: The most angry I ever got was when I read an article about somebody with a hangover saying they told their boss they had a migraine and suggesting that other do that too.
20. I like it when people say: “it’s o.k. that the drugs cause aphasia. I’ll just wait until you blurt out what you are trying to say.” No one ever says that, because they don’t know about the aphasia part of the migraine or the drugs.
21. Something kind someone can do for me during a migraine attack is: Help me when I can’t remember words
22. The best thing(s) a doctor has ever said to me about migraine is: If chocolate is a trigger, eat it everyday, instead of just occasionally.
23. The hardest thing to accept about having migraine is: It doesn’t seem like my life will ever overcome them.
24. Migraine has taught me: Help others and be gentle, because you don’t really know how much pain people are in for whatever reasons.
25. The quotation, motto, mantra, or scripture that gets me through an attack is: Get up! Take the Axert! (instead of going back to sleep.)
26. If I could go back to the early days of my diagnosis, I would tell myself: Your need to see a headache specialist
27. The people who support me most are: My family
28. The thing I most wish people understood about migraine is: I gotta work and support my family even though I don’t have a chronic disease.
29. Migraine and Headache Awareness Month is important to me because: It’s a way to tell others about migraine as a chronic disease
30. One more thing I’d like to say about life with migraine is: There needs to be more research money for this disease. There are so many people who have it, a lot of them women and it’s debilitating if you don’t have the right drugs and general doctors don’t really treat it correctly, especially pediatricians.

Reader-submitted stories solely Migraine and headache disorders 30 Things memerepresent the personal point of view, experience, and opinion of the author, not of The Daily Headache or Kerrie Smyres. Follow this link to learn how to share YOUR 30 Things about living with a headache disorder.

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