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The Good, The Bad & The Ugly

This is a reader-submitted story.

1. My diagnosis is: Chronic Complex Daily Migraines
2. My migraine attack frequency is: Daily
3. I was diagnosed in: Early 2000’s
4. My comorbid conditions include: Depression
5. I take __3__ medications/supplements each day for prevention and __1__ medications/supplements to treat an acute attack
6. My first migraine attack was: when I was 5 or 6 years old I believe
7. My most disabling migraine symptoms are: Severe Nausea and aversion to light
8. My strangest migraine symptoms are: hallucinating the smell of Gas or Cigarette Smoke, yawning, the numbness or loss of sensation in limbs and brain fog!
9. My biggest migraine triggers are: Strawberries – I love them but they hate me. We broke up 15 years ago
10. I know a migraine attack is coming on when: The nausea kicks in full belt and all I want to do is sleep
11. The most frustrating part about having a migraine attack is: They never end. As I recover from one I am hit with another then another and then another. They just keep coming
12. During a migraine attack, I worry most about: My future. What does it hold for me if the severity of my migraines continue along the same trajectory
13. When I think about migraine between attacks, I think: They’ve robbed me of me and OMG I am exhausted!
14. When I tell someone I have migraine, the response is usually: Have you tried… or My friends, mums best friend gets them
15. When someone tells me they have migraine, I think: How can I help?
16. When I see commercials about migraine treatments, I think: I wish it was that easy and head pain is only the tip of the iceberg
17. My best coping tools are: A dark room and plenty of fluid
18. I find comfort in: the cinema (weird I know)
19. I get angry when people say: You need to be more positive
20. I like it when people say: If you need anything let me know
21. Something kind someone can do for me during a migraine attack is: Let me put my health above everything
22. The best thing(s) a doctor has ever said to me about migraine is: You are not making these up. They are real and I will do my best to help you or find someone or something to help you
23. The hardest thing to accept about having migraine is: The feeling that my body is betraying me and robbing me of my life. I’m not able to do the things that ‘normal’ 20-30 year olds do.
24. Migraine has taught me: To take life one day at a time and cherish the good days
25. The quotation, motto, mantra, or scripture that gets me through an attack is: You are stronger than the migraines. You will survive this attack.
26. If I could go back to the early days of my diagnosis, I would tell myself: Cherish the days when you are able to function ‘normally’ as they might not last
27. The people who support me most are: My amazing mum who can spot when I am becoming exhausted before I can
28. The thing I most wish people understood about migraine is: It is not just a headache. It is incurable and It is an all out assault on my body
29. Migraine and Headache Awareness Month is important to me because: The more people understand the impact of migraines and headache conditions the more we can do to help future generations
30. One more thing I’d like to say about life with migraine is: I am learning to make the most of it when I can. I have learned to listen to my body better than anyone else I know. That is a positive to me

Reader-submitted stories solely Migraine and headache disorders 30 Things memerepresent the personal point of view, experience, and opinion of the author, not of The Daily Headache or Kerrie Smyres. Follow this link to learn how to share YOUR 30 Things about living with a headache disorder.

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