30 Things About Skylar’s Life With Chronic Migraine
This is a reader-submitted story.
1. My diagnosis is: Chronic Migraine
2. My migraine attack frequency is: AT LEAST once per week
3. I was diagnosed in: 1995 with Migraine but developed chronic migraine in my early 20s
4. My comorbid conditions include: None that I’ve been diagnosed as having
5. I take magnesium, Saw Palmetto each day for prevention and over the counter PM pain killers to help me sleep through an acute attack. I’ve tried relpax, avamigraine, tonopan, depakote, imitrex, nortriptilene and the list goes on with no success. I’m getting ready to meet with a new neurologist. The last did all he could but the prescription meds did nothing to help me – story of my life.
6. My first migraine attack was: 1995 (15 years old)
7. My most disabling migraine symptoms are: Excruciating Headache, Nausea, Blurred Vision, Depression, Light Sensitivity
8. My strangest migraine symptoms are: Frequent Urination which I experience prior to an attack and sometimes during one.
9. My biggest known migraine triggers are: bananas, not eating on time, physical exertion, sunlight
10. I know a migraine attack is coming on when: I see twinkling lights, a black circle blocks out the field of vision in one of my eyes, I feel Euphoric, I feel depressed, I smell citrus when there’s no citrus present,
11. The most frustrating part about having a migraine attack is: My life has to be put on hold.
12. During a migraine attack, I worry most about: If it’s a whammy the pains too much for me to worry. If it’s not, I worry about being a burden and I worry about everything that needs to be done but I can’t do. Sometimes I worry about dying.
13. When I think about migraine between attacks, I think: Is this it? Have I finally struck upon something that works? or Take your time, don’t over do it, you don’t want to trigger a migraine. N.B. I’m very rarely migraine free.
14. When I tell someone I have migraine, the response is usually: Oh I’m so sorry/I have them too.
15. When someone tells me they have migraine, I think: Honestly – I wonder if they really know what a migraine is. Then I think aww… not another sufferer.
16. When I see commercials about migraine treatments, I think: LIARS!
17. My best coping tools are: My religious beliefs and the support of my family.
18. I find comfort in: reading and mediating on the Bible; praying; attending congregation meetings; low key nights with my hubby; family gatherings – when I can attend; blogging and assisting in volunteer work when I can.
19. I get angry when people say: I have headaches too. You just need to get out more. You need to exercise more.
20. I like it when people say: Tell me what your life with migraine is like. Not for pity, I just want to be understood.
21. Something kind someone can do for me during a migraine attack is: Phone to find out if I need something to eat.
22. The best thing(s) a doctor has ever said to me about migraine is: You have chronic migraine. We need to break the cycle. I never knew that the majority of my headaches (which never stop – literally), were migrainous. My husband and I were on the search for what was wrong with me. That neurologist finally answered our question.
23. The hardest thing to accept about having migraine is: You must work within your limitations.
24. Migraine has taught me: To be empathetic towards others.
25. The quotation, motto, mantra, or scripture that gets me through an attack is: 1 Corinthians 10:13: No temptation has come upon you except what is common to men. But God is faithful, and he will not let you be tempted beyond what you can bear, but along with the temptation he will also make the way out so that you may be able to endure it. and Isaiah 41:10, 13: 10. Do not be afraid, for I am with you. Do not be anxious, for I am your God. I will fortify you, yes, I will help you, I will really hold on to you with my right hand of righteousness.’ 13. For I, Jehovah your God, am grasping your right hand, The One saying to you, ‘Do not be afraid. I will help you.’
26. If I could go back to the early days of my diagnosis, I would tell myself: Find a headache specialist.
27. The people who support me most are: My husband, parents and sister-in-law.
28. The thing I most wish people understood about migraine is: It’s not just a headache. It’s disabling neurological disease.
29. Migraine and Headache Awareness Month is important to me because: Because we need to be understood and we need better treatment plans across the board. Not just one or two patients who happen to strike upon the right doctor.
30. One more thing I’d like to say about life with migraine is: This neurological disease takes so much away from you. It takes your life, your freedom, your self-esteem, your passion and so much more.
Reader-submitted stories solely represent the personal point of view, experience, and opinion of the author, not of The Daily Headache or Kerrie Smyres. Follow this link to learn how to share YOUR 30 Things about living with a headache disorder.